Defining a Core Outcome Set for paediatric Congenital Pulmonary Airway Malformation (CPAM) patients

Randomized trials and studies determining outcome in Congenital Pulmonary Airway Malformation (CPAM) patients vary widely in outcome parameters. To date, no consensus exists on the most important outcome measures, their measurements instruments and the age at measurement. We aim to identify these outcome parameters including the measurement instrument and age at assessment.


J.M. Schnater MD PhD
S.M. Hermelijn MD, Erasmus Medical Center - Sophia Children's Hospital, Rotterdam

Further Study Information

Current Stage: Ongoing
Date: June 2020 - August 2020
Funding source(s): None

Health Area

Disease Category: Lungs & airways

Disease Name: Congenital Pulmonary Airway Malformation (CPAM)

Target Population

Age Range: 0 - 18

Sex: Either

Nature of Intervention: Surgery

Stakeholders Involved

- Clinical experts

Study Type

- COS for clinical trials or clinical research
- COS for practice
- Recommendations for outcome measures (measurement/how)


- Delphi process

The COS development will be done with an online three stage Delphi process.

Linked Studies

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