Randomized trials and studies determining outcome in Congenital Pulmonary Airway Malformation (CPAM) patients vary widely in outcome parameters. To date, no consensus exists on the most important outcome measures, their measurements instruments and the age at measurement. We aim to identify these outcome parameters including the measurement instrument and age at assessment.Contributors
J.M. Schnater MD PhD
S.M. Hermelijn MD, Erasmus Medical Center - Sophia Children's Hospital, Rotterdam
- COS for clinical trials or clinical research
- COS for practice
- Recommendations for outcome measures (measurement/how)
- Delphi process
The COS development will be done with an online three stage Delphi process.