Core Outcome Measures in Effectiveness Trials

Developing a core patient-reported outcome set for cancer survivorship monitoring

General Information

The aim of this research is to develop a patient-reported core outcome set representing the most important health-related quality of life (HRQOL) issues in cancer survivorship, for consideration in future population monitoring initiatives.

Imogen Ramsey (PhD student), University of South Australia
Prof Marion Eckert (Principal Supervisor, University of South Australia
Dr Nadia Corsini (Supervisor), University of South Australia
Dr Amanda Hutchinson (Supervisor), University of South Australia
Prof Lonneke van de Poll-Franse (Associate Supervisor), Tilburg University
Ms Julie Marker (Industry Supervisor), Cancer Voices SA

Further Study Information

Current Stage:
September 2017 - September 2019
Funding source(s):
University of South Australia Postgraduate Award

Health Area

Disease Category

Disease Name

Target Population

Age Range
18 - 85


Nature / type of Intervention


Consensus meeting
Delphi process
Focus group(s)
Systematic review

An initial list of patient-reported outcomes (PRO) in cancer survivorship will be generated via focus groups with cancer survivors and a review of available survivorship PRO measures. This list will be refined into a core set of outcome domains via a Delphi process of expert consensus. The identified PRO measures will be appraised and instrument selection will be undertaken with expert methodological advice to inform the final core outcome measurement set.

Stakeholders Involved

Clinical experts
Consumers (patients)
Patient/ support group representatives
Policy makers

Study Type

COS Patient Reported Outcomes

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