Core Outcome Measures in Effectiveness Trials

Patients' Outcomes After Acute Respiratory Failure: A Qualitative Study With the PROMIS Framework

General Information

Abstract:
BACKGROUND: As mortality rates for patients treated in intensive care units decrease, greater understanding of the impact of critical illness on patients' well-being is needed. OBJECTIVE: To describe the survivorship experience of patients who had acute respiratory failure by using the Patient Reported Outcomes Measurement Information System (PROMIS) framework. METHODS: A total of 48 adult patients who had acute respiratory failure completed at least 1 semistructured telephone-based interview between 5 and 18 months after their stay in the intensive care unit. Participants were asked about overall well-being and important health outcomes. RESULTS: Major themes were identified within each of the 3 PROMIS components: physical health, mental health, and social health. The following themes were particularly prominent: mobility impairments, pulmonary symptoms, fatigue, anxiety and depression symptoms, and decreased ability to work and participate in valued activities. Impacts on overall well-being and on relationships with friends and family members varied among the survivors. Some survivors reported gratitude, increased appreciation of life, and closer relationships to loved ones. Other survivors reported boredom, social isolation, and wishing they had not survived. CONCLUSIONS: Survivors of acute respiratory failure reported substantial issues with their physical, mental, and social health. Holistic assessments of outcomes of survivors of critical illness should capture the complex beneficial and adverse impacts of critical illness on survivors' well-being and social health.

Authors:
Eakin, M. N. Patel, Y. Mendez-Tellez, P. Dinglas, V. D. Needham, D. M. Turnbull, A. E.

Publication

Journal:
Am J Crit Care
Volume:
26
Issue:
6
Pages:
456 - 465
Year:
2017
DOI:
Further Study Information

Date:
Funding source(s):

Health Area

Disease Category
Lungs & airways
Rehabilitation

Disease Name
Respiratory failure

Target Population

Age Range
18 - 100

Sex
Either


Nature / type of Intervention
Any

Method(s)

Interview

A total of 48 adult patients who had acute respiratory failure completed at least 1 semistructured telephone-based interview between 5 and 18 months after their stay in the intensive care unit. Participants were asked about overall well-being and important health outcomes.


Stakeholders Involved

Consumers (patients)

Study Type

Patient perspectives

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