Core Outcome Measures in Effectiveness Trials

Multiprofessional evaluation in clinical practice: establishing a core set of outcome measures for children with cerebral palsy

General Information

Abstract:
Aim

To develop a national consensus on outcome measures that define functional ability in children with cerebral palsy (CP) according to the International Classification of Functioning, Disability and Health (ICF) framework.
Method

The project started in 2008 in neuropaediatric units of two university hospitals and one outpatient clinic. Each professional group selected representatives to be knowledge brokers for their own specialty. Based on the evidence, expert opinion, and the ICF framework, multiprofessional teams selected the most valid measures used in clinical practice (2009–2010). Data from 269 children with CP were analysed, classified by the Gross Motor Function Classification System, Manual Ability Classification System, and Communication Function Classification System, and evaluated.
Results

The process aimed at improving and unifying clinical practice in Finland through a national consensus on the core set of measures. The selected measures were presented by professional groups, and consensus was reached on the recommended core set of measures to be used in all hospitals treating children with CP in Finland.
Interpretation

A national consensus on relevant and feasible measures is essential for identifying differences in the effectiveness of local practices, and for conducting multisite intervention studies. This project showed that multiprofessional rehabilitation practices can be improved through respect for and inclusion of everyone involved.

Aim:
To develop a national consensus on outcome measures that define functional ability in children with cerebral palsy (CP) according to the International Classification of Functioning, Disability and Health (ICF) framework.

Authors:
Helena Mäenpää, Ilona Autti-Rämö, Tarja Varho, Wivi Forsten, Leena Haataja

Publication

Journal:
Developmental Medicine & Child Neurology
Volume:
59
Issue:
3
Pages:
322 - 328
Year:
2017
DOI:
Further Study Information

Date:
January 2008 - December 2010
Funding source(s):
Social Insurance Institution of Finland

Health Area

Disease Category
Child health
Developmental, psychosocial, & learning problems
Neurology

Disease Name
Cerebral palsy

Target Population

Age Range
0 - 18

Sex
Either


Nature / type of Intervention
Any

Method(s)

Consensus meeting

Stakeholders Involved

Clinical experts
Consumers (patients)
Families
Researchers

Study Type

ICF core set

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