Co-design of frailty interventions and core outcome measures for community dwelling older adults living with frailty in Aotearoa New Zealand

While a frailty core set for intervention studies has recently been published involving an international panel of experts and older adults living with frailty, this did not include older adults living with frailty (OALF) from within the Aotearoa New Zealand (NZ) population. Within NZ there are well-documented and significant health inequities experienced by the indigenous Maori population. Specifically with regards to frailty, Maori have higher rates of frailty, including components of frailty such as malnutrition, and frailty onset occurs at younger ages.
For frailty programme development in NZ to be equitable and have maximum impact, it is imperative that we are guided by the voices of OALF living within our community in determining COS to be used for future studies.

Contributors

Katherine Bloomfield (University of Auckland, PI)
Vanessa Burholt (University of Auckland)
Joanna Hikaka (University of Auckland)
Di North (Apollo Medical)
Michal Boyd (University of Auckland)
Carol Wham (Massey University)
John Parsons (University of Auckland)
Annabelle Claridge (University of Auckland)
John Muscadere (Queens University/Canadian Frailty Network)

Further Study Information

Current Stage: Ongoing
Date: November 2022 - September 2023
Funding source(s): Health Research Council New Zealand


Health Area

Disease Category: Health care of older people

Disease Name: Frailty

Target Population

Age Range: 55 - 110

Sex: Either

Nature of Intervention: Any

Stakeholders Involved

- Clinical experts
- Consumers (caregivers)
- Consumers (patients)
- Families
- Governmental agencies
- Methodologists
- Patient/ support group representatives
- Policy makers
- Researchers
- Service commissioners
- Service providers
- Service users

Study Type

- COS for clinical trials or clinical research

Method(s)

- Consensus meeting
- Delphi process
- Focus group(s)
- Literature review

Qualitative arts-based workshops will be undertaken with approximately 10 community-dwelling older adults living with frailty (OALF) to determine important themes around living well and feeling good. A literature review of frailty intervention outcomes, consultation with international COS researchers and results from workshops will inform short list of COS items to be used in Delphi survey.
A Delphi process involving approximately 50 OALF and 40 NZ professional stakeholders will be undertaken. Adequate Maori representation within both OALF and professional stakeholder group will be prioritized in terms of recruitment at each stage of the project.

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