COMET Initiative | Creation of a surgical core dataset in DSD care

Creation of a surgical core dataset in DSD care - a Delphi study

We are conducting a Delphi study on surgical datapoints for DSD (differences of sex development) patients. Our aim with this study is to identify a comprehensive technical, surgical and outcome set for DSD surgery. By defining a core surgical dataset, we hope to better define the demographic landscape and improve quality of care by obtaining outcome data.

Contributors

Salome Kurmann, University of Zurich, CH

Lisette ’t Hoen MD, PhD, Erasmus University Medical Center, Rotterdam, NL

Dr. med. Uchenna Kennedy, University Children's Hospital Zurich, Zurich, CH

Further Study Information

Current Stage: Ongoing
Date: February 2026 - October 2026
Funding source(s): The REDCap Platform is provided by University Children's Hospital Zurich, the work is volunteer work

Health Area

Disease Category: Child health

Disease Name: Differences in sex development (DSD)

Target Population

Age Range: 0 - 18

Sex: Either

Nature of Intervention: Surgery

Stakeholders Involved

- Clinical experts
- Patient/ support group representatives
- Service providers

Study Type

- COS for clinical trials or clinical research

Method(s)

- Delphi process

We are conducting 3 Delphi rounds. The last round will include a discussion group.

Linked Studies

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